Dear family and friends,
Our 9 year old son James has a terminal genetic muscle-wasting disease called Duchenne Muscular Dystrophy
Currently, there’s no cure and no one survives.
This cruel disease will most likely see him confined to a wheelchair from around 10-12 years old, require a respirator in his teens and ultimately due to heart or respiratory failure will pass away before his 25th birthday.
James already suffers with 5 spinal compression fractures and we’ve recently discovered his heart has begun to fail.
As any father would, I refuse to watch my son slowly die before my eyes.
That’s why on the 28th of February 2020, Elie Eid, the founder of Save Our Sons, along with myself and a group of walkers will be walking 172 KMS over six days across Melbourne, visiting schools of Kids with Duchenne to raise vital awareness and funds for life-saving research and support services.
At 120 Kg’s No matter how tough this may be for me physically, it does not compare to the lifetime of hardship that James and other kids have to endure.
Your donation, no matter how big or small will go a long way in making a difference in saving James.
Please help save my son.